Categories
Blood Cancer

My Cancer Relapse, Newest Treatments & Clinical Trials: Multiple Myeloma | Connie’s Story (2 of 3) [Video]

Connie first noticed small bumps on her arms, light purple in color, but they were explained away by her doctors. Finally, they were growing fast enough for her to push for more examination. That’s when she learned the multiple myeloma had relapsed. In video 2 of our 3-part series, Connie shares all the treatments she tried, combinations including Velcade, Revlimid (lenalidomide), Cytoxan, dexamethasone, Pomalyst, CAR T-cell therapy, and Blenrep. She recalls the most impactful side effects and shares tips on getting through them.In this Series: Our 3-part series with Connie covers her entire multiple myeloma story, from how she got diagnosed and first-line treatment, to her relapse and continuing different kinds and combinations of therapies, through to quality of life issues and how she lives life with multiple myeloma now. Thank you for sharing your story, Connie!Videos:(1 of 3) How I Got Diagnosed with Cancer (Again): https://youtu.be/gr-YZdZrw4g(2 of 3) My Cancer Relapse, Newest Treatments & Clinical Trials: This VideoFull story & transcript → https://www.thepatientstory.com/multiple-myeloma-relapse-connie-hThe interview has only been edited for clarity.Join Our Community:Website : https://www.thepatientstory.com/Facebook: @ThePatientStoryInstagram: @ThePatientStoryTwitter: @patient_story______________________________Contents of this video:00:00 – Intro00:32 – The 1st signs cancer was back01:49 – Treatment decision-making discussion with the doctor03:43 – Considering long-term side effects04:19 – Dealing with neuropathy06:31 – Experience with POMALYST07:37 – The dexamethasone (steroid) experience08:57 – Dealing with new tumors09:52 – Dealing with each relapse12:45 – The Darzalex and Pomalyst experience16:32 – CAR T-cell therapy clinical trials18:48 – The 2nd Clinical Trial at National Institutes of Health (NIH)20:55 -Starting BLENREP treatment22:17 – BLENREP side effects26:13 – Next steps in treatment27:58 – Tips for dealing with insurance30:51 – Waiting for the clinical trial to start______________________________#thepatientstory #multiplemyeloma #patientstories #cancerstories #cancerpatient #cancersurvivor #multiplemyeloma #myeloma #RRMM #MMSM #CARTcelltherapy #CART #bloodcancer #clinicaltrials

Categories
Skin Cancer

How to Access Clinical Trials in Canada [Video]

How to Access Clinical Trials in Canada presented by Stephen Sundquist – Executive Director, 3CTN, Clinical Trial NavigatorRecorded LIVE- Skin Cancer & Melanoma Information Session Webinar For more information on our webinar series visit https://www.melanomanetwork.ca/patienteducation/About Clinical Trials https://www.melanomanetwork.ca/clinical-trials/Melanoma TreatmentsImmunotherapies https://www.melanomanetwork.ca/immunotherapies/Targeted therapies https://www.melanomanetwork.ca/targeted-therapy/”Melanoma What you need to Know” patient booklethttps://www.melanomanetwork.ca/mncpub/Melanoma Support https://www.melanomanetwork.ca/support/If you are looking for support, reach us today. We are here to support you through your journey. Contact: Mary Zawadzki B.A, SSW, RSSW 1.877.560.8035 x 108 mzawadzki@melanomanetwork.caBIOStephen Sundquist, Executive Director, 3CTNStephen has over 25 years of experience in clinical research and health programs’ leadership. His clinical research expertise in CRO and pharma sponsor settings centers on the conduct of Phase 1-3b drug, biologic and device trials for a wide range of therapeutic areas. In his role as Executive Director for the Canadian Cancer Clinical Trials Network (3CTN), Stephen has been responsible for leading Network initiatives designed to optimize the capacity of participating Cancer Centres towards improving equitable access to academic cancer clinical trials for patients across the country. Thank you to our National Sponsors Bristol-Myers Squibb Canada: https://www.bms.com/ca/enInnovative Medicines: http://innovativemedicines.ca/Merck Canada: https://www.merck.ca/en/home/Novartis: https://www.novartis.ca/en Pfizer: https://www.pfizer.ca/ Sanofi: https://www.sanofi.ca/ Facebook: https://www.facebook.com/melanomanetworkInstagram: https://www.instagram.com/melanomanetworkTwitter: https://twitter.com/MelanomaNetwork https://www.melanomanetwork.ca/

Categories
Blood Cancer

Living with Multiple Myeloma: How I Got Diagnosed with Cancer | Connie’s Story (1 of 3) [Video]

Connie calls herself a “Wyoming cowgirl,” who enjoys spending quality time with her three kids and husband of nearing 40 years. It was a shock when she was diagnosed with multiple myeloma, a fairly rare cancer of plasma cells that is very treatable but still not curable. It was the second cancer she’d been diagnosed with, after going through treatment for thyroid cancer in 2001. In this segment, Connie describes how she was diagnosed with multiple myeloma, how she processed the diagnosis, describes the stem cell transplant, and her first remission.In this Series: Our 3-part series with Connie covers her entire multiple myeloma story, from how she got diagnosed and first-line treatment, to her relapse and continuing different kinds and combinations of therapies, through to quality of life issues and how she lives life with multiple myeloma now. Thank you for sharing your story, Connie!Full story & transcript → https://www.thepatientstory.com/multiple-myeloma-diagnosis-connie-h/Join Our Community:Website : https://www.thepatientstory.com/Facebook: @ThePatientStoryInstagram: @ThePatientStoryTwitter: @patient_story______________________________Contents of this video:The interview has only been edited for clarity.00:00 – Intro00:51 – Connie’s Introduction02:40 – What were the 1st symptoms?04:28 – Remembering the moment of diagnosis05:21 – Processing a cancer diagnosis a 2nd time06:25 – What to do when you get a cancer diagnosis08:00 – The stem cell transplant10:21 – Staying in the hospital11:39 – Fighting bacterial infection (H. Pylori)13:58 – Understanding remission in multiple myeloma15:25 – Dealing with anxiety______________________________#thepatientstory #multiplemyeloma #patientstories #cancerstories #cancerpatient #cancersurvivor #multiplemyeloma #myeloma #RRMM #MMSM #CARTcelltherapy #CART #bloodcancer #clinicaltrials

Categories
Prostate Cancer

Are Clinical Trial and Real World Experiences Different for Men With Prostate Cancer? [Video]

Do patients in clinical trials really reflect the real world experiences of patients on the same therapies and treatments?Dr. Hans M. Westgeest has been trained as a medical oncologist and works in Amphia hospital, Breda, the Netherlands since 2015. He is specialized in uro-oncology and melanoma. From 2011, he is the coordinating researcher of CAPRI (CAstration-resistant Prostate cancer RegIstry), an observational study on CRPC in the Netherlands. He published on differences in trial and real world populations, real world outcomes of sequential treatment, palliative care and patient-reported outcomes in CRPC. He will defend his PhD-dissertation on these topics on January 14, 2022 at the Erasmus University, Rotterdam, the Netherlands. Dr. Westgeest is interviewed by Darryl Mitteldorf, LCSW from Malecare.Please click on SUBSCRIBE to watch more videos from this years prostate cancer patient conference.More information about prostate cancer at https://malecare.org

Categories
Lung Cancer

Lung Cancer Screening Patient Education [Video]

The U.S. Preventive Services Task Force recommends yearly lung cancer screening for people ages 50 to 80 who have a 20 pack-year or more smoking history and currently smoke or have quit within the past 15 years. For more information about Massey’s Lung Cancer Screening Program or to schedule an appointment, please call (804) 827-LUNG (5864).Website: masseycancercenter.orgFacebook: http://www.facebook.com/VCUMasseyCancerCenterTwitter: http://www.twitter.com/vcumasseyVCU Massey Cancer Center is one of only 71 National Cancer Institute-designated institutions in the country that leads and shapes America’s cancer research efforts. Working with all kinds of cancers, Massey conducts basic, translational and clinical cancer research, provides state-of-the-art treatments and clinical trials, and promotes cancer prevention and education. Since 1974, Massey has served as an internationally recognized center of excellence. It offers the most cancer clinical trials in Virginia and serves patients at multiple locations. Its 1,000-plus researchers, clinicians and staff members are dedicated to improving the quality of human life by developing and delivering effective means to prevent, control and ultimately cure cancer. Visit Massey online at masseycancercenter.org or call 877-4-MASSEY for more information.

Categories
Pediatric Cancer

Costs of Clinical Trials: Pediatric Cancer [Video]

Pediatric Oncologist Dr. Theodore Laetsch talks about the costs that are associated in some clinical trials and how others can be free of charge.Pediatric Cancer: How Genetics Impact Treatment and Clinical Trials aired live on Facebook featuring two pediatric oncologists Jason Freedman and Ted Laetsch. This event was hosted by Fiona Evans, Lead Patient Advocate at Massive Bio. Learn more about this live event: https://massivebio.com/pediatrics-cancer-genetics-treatment-clinical-trials. #pediatriccancer #childhoodcancer #oncology #cancer #clinicaltrialsComment on this video and subscribe to our channel! Contact Us: Phone: +1 844-627-7246 Email: support@massivebio.com Services: Clinical Trial Matching System The Virtual Tumor Board Visit our website to learn more. https://massivebio.com

Categories
Colon Cancer

Pedro’s Story: Colon Cancer and a Clinical Trial [Video]

Following a colon cancer diagnosis in 2018, followed by several surgeries and chemotherapy, Pedro ended up at UCSF (University of CA, San Francisco) for yet another surgery. A clinical trial was suggested since pervious interventions were not effective at halting or reversing the cancer. Pedro enrolled in a clinical trial with UCSF in 2019. UCSF was also participating in the Lazarex IMPACT (Improving Patient Access to Cancer Clinical Trials) program, which let patients know at the time of consent for the trial that financial assistance was available to cover travel expenses. Pedro and his wife Kathi live in Redding, CA which is a 4 hour drive (one way) to San Francisco. In this interview they describe the impact of financial assistance on Pedro’s ability to participate in the clinical trial. To learn more about Lazarex Cancer Foundation visit www.lazarex.org.

Categories
Skin Cancer

Dr Pippa Corrie Melanoma Clinical Trials Update [Video]

Melanoma Patient Conference virtual meeting hosted by Melanoma Focus in October 2021. Dr Pippa Corrie talks through some of the interesting & exciting clinical trial developments we have seen over the last 12-18 months.

Categories
Medical Marijuana

Health Ministry open to medical marijuana clinical trials [Video]

The Health Ministry is open to clinical research on the use of medical marijuana for medical purposes, said minister Khairy Jamaluddin in the Dewan Rakyat on Wednesday (Nov 17).Read more at https://bit.ly/3CvryDSWATCH MORE: https://thestartv.com/c/newsSUBSCRIBE: https://cutt.ly/TheStarLIKE: https://fb.com/TheStarOnline

Categories
Pediatric Cancer

Biobanking: how can we make it meet the needs of researchers? [Video]

In the final TRI Director’s Choice Seminar for 2021, our guest speakers and panellists put the spotlight on the field of biobanking in medical research. They share their experiences in obtaining and collecting biological and clinical data from human subjects to establish and maintain successful biobanks, along with the enablers and barriers they have encountered. We also asked them to share their big-picture learnings.MCs: Prof John Upham & Prof Maher GandhiSpeakers:A/Prof Andy Moore (Children’s Health Qld Tumour Biobank)Director of Research & Senior Staff Specialist, Paediatric Oncology, Children’s Health Queensland Hospital and Health ServiceA/Prof Glenda Gobe (Kidney Biobank)School of Biomedical Sciences, Faculty of Medicine, The University of QueenslandPanellistsProf Vicki Clifton (Queensland Family Cohort Study)NHMRC Senior Research Fellow; Mothers, Babies and Women’s Health Research Theme Program Leader; Pregnancy and Development Research Group Leader,Mater ResearchMs Rebecca Rogers (Breast cancer biobank)Pathology and Clinical Research Coordinator, Mater ResearchProfessor Gerald Holtmann (Gut microbiome biobank)Director of Gastroenterology & Hepatology, Princess Alexandra Hospital; Professor of Medicine & Director of Clinical Innovation, The University of Queensland

Categories
Lung Cancer

Turning the Tide on Lung Cancer in the African American Community [Video]

In honor of Lung Cancer Awareness Month, Massey researchers Alex Krist, M.D., and Rashelle Hayes, Ph.D., discuss tobacco disparities, lung health and screening for lung cancer. The presentation includes a screening of the short film Black Lives, Black Lungs.Website: masseycancercenter.orgFacebook: http://www.facebook.com/VCUMasseyCancerCenterTwitter: http://www.twitter.com/vcumasseyVCU Massey Cancer Center is one of only 71 National Cancer Institute-designated institutions in the country that leads and shapes America’s cancer research efforts. Working with all kinds of cancers, Massey conducts basic, translational and clinical cancer research, provides state-of-the-art treatments and clinical trials, and promotes cancer prevention and education. Since 1974, Massey has served as an internationally recognized center of excellence. It offers the most cancer clinical trials in Virginia and serves patients at multiple locations. Its 1,000-plus researchers, clinicians and staff members are dedicated to improving the quality of human life by developing and delivering effective means to prevent, control and ultimately cure cancer. Visit Massey online at masseycancercenter.org or call 877-4-MASSEY for more information.

Categories
Pancreatic Cancer

Pancreatic Cancer Advancements [Video]

Using a multidisciplinary approach, the Florida Center of Pancreas Diseases is focused on keeping patients close to home for care. “We treat nearly 300 patients with pancreatic disease a year. We’re doing well over 100 pancreas operations a year with excellent outcomes,” said Dr. Mark Bloomston, a surgical oncologist on the medical staff of Lee Health. The program—which is made of up health experts at Genesis Care, South Florida Surgical Oncology, Regional Cancer Center, and Florida Cancer Specialists—has now been designated a pancreatic center of excellence by the national pancreas foundation. “It’s a great achievement, and it gives us the chance to kind of legitimize what we knew we were already doing. We now are listed on the same level with places like the Mayo Clinic and the Cleveland Clinic. We are the only non-academic institution in the state of Florida that has been granted this center of excellence status,” said Dr. Bloomston. The achievement also opens doors to new resources, medical treatments, and clinical trials for patients diagnosed with pancreatic cancer. “We have the third highest incidence of pancreatic cancer, so we are talking probably about 4,700 people in this state alone will get pancreatic cancer this year, and these patients don’t want to travel. They don’t want to have to go far from home to have major surgery, to have intense chemotherapy, and to have cutting edge radiation,” he said. Giving patients the best possible outcome while keeping them close to home. View More Health Matters video segments at LeeHealth.org/Healthmatters/Lee Health in Fort Myers, FL is the largest network of health care facilities in Southwest Florida and is highly respected for its expertise, innovation and quality of care. For more than 100 years, we’ve been providing our community with personalized preventative health services and primary care to highly specialized care services and robotic assisted surgeries. Lee Health – Caring People. Inspiring Care.Visit LeeHealth.org