Saint Paul nonprofit offers caregivers a safe space [Video]

SAINT PAUL, Minn. — Sean Breininger is a fighter. He has Fanconi Anemia, a rare genetic disorder that leads to bone marrow failure and cancers at a rate of 700 times that of the general population.

“I’ve had tongue cancer twice, throat cancer twice, esophageal cancer. I lost my bladder to bladder cancer, and I’ve had over a hundred skin cancers, including melanoma,” said Sean.

He and his wife, Allison Breininger, have been on this journey together for 13 years. Allison stepped in to be his caregiver.

“Every part of our life was changed,” said Allison. “You’re bearing witness to the suffering of your favorite person over and over and over again.”

While Sean fights this rare disease, Allison fights to be understood.

“I noticed that when I did talk to …